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GETTING TO KNOW M.E.

I’ve had ME / Chronic Fatigue officially for a two years, & unofficially for 5!   It turns out that diagnostics, blood tests, colonoscopies, endoscopies, x-rays, MRI scans, ultra sounds & more blinking 'blood' tests, ….. takes a 'bloody' long time …..5 long, really hard years 'on hold' to be diagnosed with an illness that conventional doctors  are in a ‘tizz’ about how exactly to 'label', let alone treat.  If you have this illness then you already know that conventional 'pharmaceutical chemical' medicine is NOT going to cure you, no 'pill' or 'injection' is going to make things any better....the harsh truth is that if you want to get better you're going to have to do this yourself.  You are going to have to open your mind to possibility & embrace other holistic stuff that in any other circumstance you would at best believe to be of minimal help & at worse; deem as totally woo woo & a whole load of hokum   

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I was bloody angry....how dare this illness come into my life and ruin everything.  I was a single mum, illness was not an option for me.   I decided very early on that this was not going to be my reality.   I was going to use all my anger & determination to get myself out of this hell hole.  I spent at least 2 years researching my condition, experimenting and expanding my knowledge with the promise that if I ever found a way out I would do everything in my power to share this knowledge & help others with the condition....& so here I am as promised....

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​I know you're in emergency mode....I know you don't have time or energy to faff around ...you just want someone to tell you what to do and when to do it. .....the why can come later when you're out of chronic mode…..if you’re utterly EXHAUSTED physically, mentally, emotionally, …you’ve stumbled into a place that I'm hoping will help

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​When Bertie was a baby he suffered terribly with reflux….he couldn’t sleep, rarely settled & writhed around in terrible discomfort with awful tummy & poo problems & the vomit ….well let’s just say it was of the exorcist type, of violent almost demonic proportions …..I visited the GP countless times….asked around……frantically google searched solutions & remedies……I was given medication…..& recommended lots of books from other well-meaning mums…..but what people didn’t seem to get was that I WAS IN EMERGENCY MODE……

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​…..all I needed was someone just to give me a ready-made CHECKLIST….say DO THIS when he does this, & DO THIS when that happens & do this to help when this happens….I DIDN’T HAVE THE TIME to read 400 plus pages, all about the nitty gritty possible theories about why he may or may not be suffering from reflux ….I already knew he was suffering.  I already knew he was in pain.  I didn’t have the time to scroll down endless search lists.  I didn't have any mental capacity left in my sleep deprived mind to make any hefty decisions about exactly which course of either a,b,c, d & ….x,y, z action I should take…….I needed HELP NOW... I just needed someone to tell me what to do

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I needed a simple CLEAR CONCISE ACTION PLAN THAT ENCOMPASSED AS MANY OF THE SUGGESTED SOLUTIONS OUT THERE.  Right then, I just needed a plan so that my poor darling little boy didn’t have to suffer any more discomfort!!!!.......I just needed to get out of EMERGENCY MODE just long enough for him to start feeling better

If you have M.E. Chronic Fatigue Syndrome then you’re right here….. bang in the middle of EMERGENCY MODE, …. & even if you don’t suffer from ME / CFS & just really bloody brain numbingly EXHAUSTED.  You’ll still be needing some help……

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